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NOVEMBER 2023 | 10 MIN VIDEO

MG Real Talks: The Ins and Outs of Being an MG Supporter

Watch myasthenia gravis (MG) supporters share their experiences of caring for a loved one with MG.

WATCH THE MG REAL TALKS VIDEO

Sign up for MG United to watch the MG Real Talks video on being an MG supporter. Get the latest MG updates, resources, MG-friendly recipes, ideas on how to track symptoms, stories about people living with and managing MG, seasonal tips and much more delivered to your inbox!

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Which symptoms impact your daily life with myasthenia gravis (MG)? Select all that apply.*

adl segment symptom Talking Chewing Swallowing Breathing Impaired ability to brush teeth or comb hair Impaired ability to arise from a chair Double vision Eyelid droop I do not have MG symptoms

Which of these goals is most important to you or the person you know who has MG?*

Goals My goal is to minimize MG effects, even if it means not doing certain things where I may overexert myself. My MG is under control and doesn’t bother me that much, and I want it to stay that way. My goal is to be able to make plans and keep them so I can do more of what I love. My MG isn’t great, but I’m content with things staying this way as long as I don’t lose ground. I do not have MG.

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Sharing this information will help us provide you with the most relevant MG updates, resources and information based on where you are in your MG journey and where you live in the country.

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Which of these things best describes you?

Describe I have MG I care for a loved one who has MG I know someone who has MG

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Supporters of people living with MG may feel overwhelmed and unsure where to start when faced with becoming a caregiver. To help them navigate that journey, this roundtable discussion covers tips for supporting loved ones with MG, keeping self-care a priority, effective advocacy and preventing caregiver burnout.

This discussion is part of our MG Real Talks series, featuring MG community members sharing their real experiences—like this conversation on navigating treatment coverage. Our latest video features a variety of MG supporters reflecting on their experiences with several topics, including:

How they learned about MG and what their supporter role would entail
Maintaining awareness of symptom changes in their loved ones
Helping their loved ones set and achieve goals
Balancing caring for themselves with caring for their loved ones
Their biggest challenges from being an MG supporter
Communicating mindfully and empathetically with their loved ones about MG, especially with it being an “invisible condition”
Working with a mentor who can relate to what they’re going through

Want more resources for supporting your loved one? Join Go for Greater, a community-wide challenge aimed to help achieve a greater everyday with MG, and start with Goal #1: Greater understanding from loved ones.

Learn more about the panelists

Our moderator, Diane,* has been a supporter for several years to her wife, Kathy,* who lives with MG. In addition to having caregiving experience, Diane is a psychotherapist with a wealth of insights. She has several tips for MG supporters that can help them communicate their own needs to their loved ones.

Travis* is a supporter to his wife, Kait,* who has lived with MG since she was a child. When it comes to balancing caregiving with both parenthood and his own well-being, Travis finds fitness to be a healthy outlet, as well as leaning on his support system.

Ashley* works in healthcare and is a supporter to her boyfriend, Mike,* who lives with MG. Since Mike was diagnosed with MG before they met, Ashley has learned a lot about the condition from him. She has also tapped into her workplace knowledge, however, when it comes to MG treatment.

Jerry* is a supporter to his wife, Karon,* who has lived with MG for 10+ years. They have learned about MG together from the beginning of their journey, and Jerry has gotten very involved in the MG community alongside his wife—from attending conferences to serving on advisory boards.

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Health Insurance 101: Navigating Coverage with MG

Premiums. Deductibles. Medicare vs. commercial coverage. If you’re feeling lost in the world of health insurance, this breakdown may help.

7 MIN READ

John’s<sup>*</sup> MG Diagnosis Teaches Him to Lean on His Family

REAL PEOPLE, REAL STORIES

John’s^* MG Diagnosis Teaches Him to Lean on His Family

This father, coach and school administrator finds comfort and peace in learning when to ask for help from his support system.

8 MIN READ

<em>Goal #1:</em> <b>Greater understanding from loved ones</b>

FOR THE COMMUNITY

Goal #1: Greater understanding from loved ones

Even when your family and friends are highly supportive, it can still be hard for them to fully understand MG. This goal is about empowering you with the information to explain exactly how MG affects you—in a simplified way—to help them really “get it.”

LEARN MORE

Want more great content? Follow MG United on social media.

*Paid contributor to MG United

argenx, a global immunology company, created MG United to support people living with myasthenia gravis (MG) and those who care for them. By providing information on MG United, argenx aims to help improve the lives of people suffering from this autoimmune disease. MG United does not offer medical advice; always consult your healthcare team for personalized medical guidance.

The brands listed are the trademarks of their respective owners.

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Search results

REAL PEOPLE, REAL STORIES

MG Real Talks: The Ins and Outs of Being an MG Supporter

Watch myasthenia gravis (MG) supporters share their experiences of caring for a loved one with MG.

WATCH THE MG REAL TALKS VIDEO

Thank you, #firstName#!

If you have a minute, please tell us a little more about yourself

Learn more about the panelists

Sign up for MG United!

Sign up for MG United!

YOU MAY ALSO LIKE

Health Insurance 101: Navigating Coverage with MG

John’s* MG Diagnosis Teaches Him to Lean on His Family

Goal #1: Greater understanding from loved ones

Want more great content? Follow MG United on social media.

John’s^* MG Diagnosis Teaches Him to Lean on His Family