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SEPTEMBER 2022 | 12 MIN VIDEO

MG Real Talks: The Hidden Challenges of Myasthenia Gravis

Members of the MG community discuss how they’ve coped with MG challenges in their everyday lives.

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Which symptoms impact your daily life with myasthenia gravis (MG)? Select all that apply.*

adl segment symptom Talking Chewing Swallowing Breathing Impaired ability to brush teeth or comb hair Impaired ability to arise from a chair Double vision Eyelid droop I do not have MG symptoms

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Goals My goal is to minimize MG effects, even if it means not doing certain things where I may overexert myself. My MG is under control and doesn’t bother me that much, and I want it to stay that way. My goal is to be able to make plans and keep them so I can do more of what I love. My MG isn’t great, but I’m content with things staying this way as long as I don’t lose ground. I do not have MG.

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Describe I have MG I care for a loved one who has MG I know someone who has MG

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Everyone’s myasthenia gravis (MG) story is different, including the challenges they may face as they navigate careers, hobbies and everyday life with MG. In this roundtable discussion, three people living with MG, a caregiver and a neurologist share their stories of working through these challenges. A few of the topics they discuss include:

Balancing a career and MG
Working through changes in identity
Adjusting family dynamics
Prioritizing self-care
Communicating their needs to colleagues and loved ones

Check out the video to hear more. And for more tips and perspectives from people living with MG, check out MG Real Talks: Self-Advocacy to Better Partner with Your Doctor.

Learn more about the panelists

Since his diagnosis in 2010, John* has balanced the roles of athlete, coach and administrator. He believes communication is key to helping others understand his MG symptoms and challenges, especially with colleagues who may not know what to expect.

Mary is John’s wife and his biggest supporter. Throughout John’s MG journey, she’s learned when to take the lead and be an advocate—and when to give John the space to work through challenges on his own.

Courtney* began experiencing MG symptoms in college and was diagnosed with MG after graduation. Today, she feels lucky that she was able to step into adult life and learn to live with MG at the same time. Her experiences have taught her communication strategies to help navigate stress, strengthen her relationships and build a strong support network.

Our moderator, Lauren, lives with MG and is a member of the patient advocacy team at argenx. As someone diagnosed with MG in her 20s, she’s made some lifestyle adjustments—including a career shift to a role that demanded less time on her feet. She believes the key to achieving her dreams while living with MG is knowing when to take a step back and allow herself a break.

Matt is a neurologist who’s worked with many people living with MG. From his first experience as a medical resident helping someone in myasthenic crisis, he knew he wanted to keep helping people living with MG achieve their best life. He works to support people with MG in accomplishing their goals—while still honoring their body’s limits.

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REAL PEOPLE, REAL STORIES

MG Real Talks: The Hidden Challenges of Myasthenia Gravis

Members of the MG community discuss how they’ve coped with MG challenges in their everyday lives.

If you have a minute, please tell us a little more about yourself

Learn more about the panelists

YOU MAY ALSO LIKE

MG Real Talks: Self-Advocacy to Better Partner with Your Doctor

Everyday Energy Savers: Tips and Tricks from the MG Community

John’s^* MG Diagnosis Teaches Him to Lean on His Family

Search results

REAL PEOPLE, REAL STORIES

MG Real Talks: The Hidden Challenges of Myasthenia Gravis

Members of the MG community discuss how they’ve coped with MG challenges in their everyday lives.

SIGN UP FOR MG UNITED TO WATCH THE MG REAL TALKS VIDEO

Thank you, #firstName#!

If you have a minute, please tell us a little more about yourself

Learn more about the panelists

Sign up for MG United!

Sign up for MG United!

YOU MAY ALSO LIKE

MG Real Talks: Self-Advocacy to Better Partner with Your Doctor

Everyday Energy Savers: Tips and Tricks from the MG Community

John’s* MG Diagnosis Teaches Him to Lean on His Family

Want more great content? Follow MG United on social media.

John’s^* MG Diagnosis Teaches Him to Lean on His Family